Four year old Old Saybrook resident Avery Rose Leopoldino suffers from CDKL5, a rare genetic mutation that mostly affects girls because it is located on the X chromosome. About 400 people around the world are diagnosed with this disease and Avery is the only one in Connecticut to have it. Because of these miniscule numbers, little is known in the medical community about CDKL5.
Avery attends Goodwin School but currently suffers with up to six seizures a day and cannot walk, talk or hold her head up. She is also visually impaired, cannot use her hands and suffers from gastrointestinal issues.
Avery’s parents Mark and Kristen donate all funds raised to CDKL5 organizations and want to raise public awareness of the this rare disorder. Avery’s father Mark is the manager of Bill’s Seafood Restaurant in Westbrook.
Madhatters Theatre Company is supporting Team Avery in the their upcoming production of ‘Disney’s Aristocats’ at the Ivoryton Playhouse. Performances Friday May 18 at 7pm, Saturday May 19 at 2pm & 7pm and Sunday May 20 at 2pm.
Tickets $15 Adults and $8 Children 12 and under. All concession proceeds to benefit Team Avery. If you would like to support Avery, please mention Team Avery when you call to purchase tickets and we will donate $1 of the ticket price to them. For tickets please call (860) 395-1861